Stay Informed of Your Family Health History

dinner settingThanksgiving Day is National Family Health History Day

Family health history is a record of the diseases and health conditions in your family. Most people have family history of at least one chronic disease that makes them more likely to get that disease.(1)

Staying informed of your family’s health history can help you and your doctor prepare for and prevent diseases you are more likely to get and that can affect you later in life.

Do your research

Be informed of your family health and medical histories before your next doctor’s appointment. Even if you don’t know all your health history information, share what you do know.

Collect family health history information through conversations with blood relatives. The most important relatives to talk to are your parents, siblings, and your children. Next, you may want to talk to grandparents, uncles and aunts, nieces and nephews, and half-brothers and half-sisters. Ask them questions like:

  • Do you have any medical conditions, including chronic diseases, such as diabetes, or health conditions, such as high blood pressure?
  • Have you had any other serious diseases, such as cancer or stroke?
  • How old were you when each of these diseases and health conditions was diagnosed?
  • What is our family’s ancestry – from what countries did our ancestors come to the United States?
  • For relatives who have died, be sure to ask about the cause and their age of death.(2)

Try to gather the following information for each person:

  • Sex assigned at birth
  • Date of birth
  • Ethnicity/Ancestry
  • Medical conditions
  • Mental health conditions, including alcoholism or other substance abuse
  • Pregnancy complications
  • Age when each condition was diagnosed
  • Lifestyle habits, including diet, exercise, and tobacco use
  • For relatives who have died, age at death and cause of death(3)

You might find it useful to look at important family paperwork and vital records. Birth certificates, marriage licenses, and death certificates are usually available through state and county government offices. Electronic personal health records are a good resource, too.

Use whatever information you collect to create a family health history.

Paint a portrait

The Surgeon General’s “My Family Health Portrait” is a free online tool to help you organize and share your family health history information with your doctor and other family members.

Save copies of family health history records, including your family health portrait, to a flash or external hard drive or a secure cloud service. This can help you keep track of the information and ensure it is easily accessible in an emergency.

Update the information in your family health portrait regularly and as the health and medical histories of family members change.

Keep a personal health record

Chronic diseases can be passed down through generations. If you live with a chronic disease(4), keeping a personal health record (PHR) can help future generations better understand their health history. Remember, you’re not doing this to just protect your health, but also to help others.

A PHR is an electronic application that patients can use to maintain and manage their health information. A PHR can also help caregivers, such as those caring for young children, elderly parents, or spouses, manage their patients’ care.(5)

There are many benefits to keeping a PHR. For example, PHRs are protected from the effects of emergencies (e.g., floodwater, fire, and smoke) and accessible when traveling, such as during an evacuation.(5)

The types of information you could put in a personal health record include:

  • Your name, birth date, blood type, and emergency contact information.
  • The date of your last physical exam.
  • The dates and results of tests and screenings.
  • The dates of major illnesses and surgeries.
  • A list of your medicines and supplements, the dosages, and how long you’ve taken them.
  • A list of allergies.
  • A list of chronic diseases, including the date of diagnosis.
  • A history of medical conditions in your family.(6)

Knowing and acting on the information is an important way to prepare and protect your health.

References

  1. https://www.cdc.gov/genomics/famhistory/famhist_basics.htm
  2. https://www.cdc.gov/genomics/famhistory/famhist_adults.htm
  3. https://www.mayoclinic.org/healthy-lifestyle/adult-health/in-depth/medical-history/art-20044961
  4. https://www.cdc.gov/chronicdisease/about/index.htm
  5. https://www.healthit.gov/faq/what-are-benefits-personal-health-records
  6. https://medlineplus.gov/personalhealthrecords.html

Resources

 

Thanks in advance for your questions and comments on this Public Health Matters post. Please note that CDC does not give personal medical advice. If you are concerned you have a disease or condition, talk to your doctor.

Have a question for CDC? CDC-INFO (http://www.cdc.gov/cdc-info/index.html) offers live agents by phone and email to help you find the latest, reliable, and science-based health information on more than 750 health topics.

7 Ways to ‘Be Gutsy’ this March!

Let’s face it: your colon isn’t exactly a dinner party topic. It takes a lot of guts to bring up colorectal cancer—to your parents, your spouse, your doctor, your friends. Don’t be afraid to pipe up about the second-leading cancer killer of both men and women, because it’s proven that simple steps save lives.

Here’s how you can Be Gutsy for colorectal cancer prevention:

  1. Digest some information. CDC’s Screen for Life: National Colorectal Cancer Action Campaign gives you the lowdown on what colorectal cancer is and who can get it. (Hint: it’s anybody, but there are ways to lower your risk.) You can hear celebrities like Meryl Streep share how colorectal cancer has affected their lives, share graphics and facts, and even test your knowledge with a quiz.
  2. Get yourself a little screen time. Be famous for smart choices—there are lots of different screening tests for colorectal cancer. Most colorectal cancer cases happen in people 50 and older, so if you’re between 50 and 75 years old, experts say you should be screened. Remember, the best test is the one that gets done!
  3. Go history hunting. Some people are at higher-than-average risk for colorectal cancer. If you or a family member has had it before, you could be at risk. You’re also more likely to get it if you have an inflammatory bowel disease like Crohn’s or certain genetic illnesses. Talk to your doctor about whether you should be screened.
  4. Trust your gut. The point of recommended colorectal screening is finding growths called polyps that can turn into cancer if left alone. But if you’re having symptoms like stomach pains or weight loss for no reason, or if you see blood when you use the bathroom, talk to your doctor. Other problems than cancer can cause these symptoms, too.
  5. Scale it back. Here’s one a lot of Americans still don’t know: being overweight or obese is associated with at least 13 different types of cancer, including colorectal cancer. Healthy eating and physical activity help keep weight down and lower risk.
  6. If you drink, think. Drinking too much alcohol can cause your health to take a hit. That includes a higher risk of colorectal and other cancers, as well as other problems that might come up now or later in life.
  7. Quit for quality of life. Cigarette smoking can cause colorectal cancer and other cancers outside the lungs. If you smoke, you can cut your cancer risk by quitting now. You’ll do friends and family a favor, too, by keeping them away from damaging secondhand smoke.

You have the tools and know-how to lower your risk of colorectal cancer. Be Gutsy and spread the word!

In Case You Missed It: Top 10 Posts From 2017

 

In honor of the New Year, we are rounding up the blogs that were most viewed by you, our readers, in 2017.

  1. America’s Hidden Health Crisis: Hope for Those Who Suffer from ME/CFS
    Public Health Matters recognized the 25th anniversary of International Awareness Day for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia. Between 825,000 and 2.5 million Americans are estimated to have ME/CFS, yet this debilitating illness remains largely invisible to most Americans.


  2. John Snow: A Legacy of Disease Detectives
    In 1854, John Snow was the first to use maps and records to track the spread of a disease back to its source. Today, his ideas provide the foundation for how we find and stop disease all over the world. Public Health Matters highlighted the CDC Epidemic Intelligence Service in honor of the birthday of the father of epidemiology and the first true disease detective.


  3. Tips to Protect Yourself from Norovirus
    Every year, 19 to 21 million people get sick with diarrhea and vomiting caused by norovirus. Public Health Matters shared five steps you could take to help protect yourself and others from this virus that can lead to dehydration or more serious illness, especially in young children and older adults.


  4. Why Diarrhea & Swimming Don’t Mix
    While sunburn and drowning might be the health risks that first come to mind when you think about swimming, diarrhea is another culprit. Outbreaks of diarrheal illness linked to swimming are on the rise. Public Health Matters shared five important facts about diarrhea-causing germs at aquatic venues and how to protect yourself and loved ones during Healthy and Safe Swimming Week 2017.


  5. Keep your pets safe in an emergency: 5 things to know
    Many pet owners are unsure of what to do with their pets if they are faced with extreme weather or a natural disaster. June was National Pet Preparedness Month and Public Health Matters highlighted five things you can do to keep your pets safe during and after an emergency.


  6. Get a Flu Shot to Protect Your Heart and Your Health
    People with certain long-term medical conditions, such as heart disease, are at high risk of developing serious complications from flu. Public Health Matters discussed the complications of flu and the important steps you can take to protect yourself and those around you including getting a flu vaccine.


  7. Predicting Community Resilience and Recovery After a Disaster
    After a disaster, the number of people with psychological trauma exceeds the number of people with physical injury by as much as 40 to 1, but there is much more research and emergency response focus on the physical effects of a disaster rather than the psychosocial effects. Public Health Matters interviewed a professor from Johns Hopkins Bloomberg School of Public Health about their innovative model and index to measure resilience in the United States.


  8. Safety Tips Every Contact Lens Wearer Should Know
    Forty-five million people in the United States who wear contact lenses to correct your vision. Eye infections related to improper contact lens wear and care are serious and can lead to long-lasting damage, but they are often preventable. Public Health Matters discussed the science behind some of the important contact lens wear and care recommendations in observance of Contact Lens Health Week.


  9. Preparing for College Life: A Healthy Guide
    Public Health Matters invited our David J. Sencer CDC Museum Intern from the Walker School to guest write a post with tips for fellow graduating high school seniors to prepare to head off to college.


  10. Rural America in Crisis: The Changing Opioid Overdose Epidemic
    In America, 15 out of 100 people live in a rural area. The rate of drug overdose deaths in rural areas has surpassed rates in urban areas, and it is a huge public health concern. Public Health Matters explored how rural areas are different when it comes to drug use and drug overdose deaths, including opioids and CDC’s response to this epidemic.

 

We want to hear from you!

The New Year is not just about reflecting on the past, and as we look ahead to 2018 we want to know what topics you would like to see on Public Health Matters. Please feel free to leave a comment below or send us an email so we can make sure that we are sharing content that is useful and interesting to you.

Don’t forget to subscribe to our newsletter, follow @CDCemergency, or visit us on Facebook so you are the first to hear about new blogs.

Loving Someone With Epilepsy

MRI brain scan

When Zayan first told me that he has epilepsy, I didn’t believe him.  “You mean seizures, right?”  I was embarrassed at how much I didn’t know.

Epilepsy is a disorder of the brain that triggers recurrent seizures. It can be caused by different conditions that affect a person’s brain. A person is diagnosed with epilepsy when they have had two or more seizures that are not caused by another medical condition such as a high fever or low blood sugar.

Zayan was thirteen years old when he had his first seizure in his school computer lab in Dhaka, Bangladesh. “The moments leading up to my seizure are hazy, but when I woke up in the hospital, my mind was wiped clean.  I didn’t recognize my own father, whose tear-strewn face was fixated on mine.  I couldn’t even remember how to talk.”

Photo of Zayan Shamayeen
Zayan Shamayeen, 22, encourages others to not let an illness prevent them from reaching their full potential. Photo credit: Dear World

Following the incident, Zayan took a long break from school to seek medical care.  He was diagnosed with idiopathic epilepsy, which is caused by an unknown factor that may be genetic. Epilepsy can be caused by different conditions, including stroke, brain tumor, brain infection, or traumatic brain injury. Zayan is one of the 60% of people where the cause of epilepsy is unknown.

Caring for someone during a seizure

As my friendship with Zayan grew, I became passionate about understanding how epilepsy impacted his daily life. One morning I witnessed a seizure suddenly take over his body and it was one of the most frightening moments we shared together. That experience made learning seizure first aid a priority for me so that I could take care of Zayan if and when he had another seizure.

If you know someone living with epilepsy, you might have to care for them during or after a seizure. The goal of seizure first aid is to keep the person safe until the seizure stops on its own. Stay with the person until the seizure ends and he or she is fully awake. After it ends, help the person sit in a safe place. Once they are alert and able to communicate, tell them what happened in very simple terms. Comfort the person and speak calmly.

You can take action to help someone during a seizure:

  • Ease the person to the floor.
  • Turn the person gently onto one side.  Loosen ties or anything around the neck that may make it hard to breathe.
  • Clear the area around the person of anything hard or sharp to prevent injury.
  • Put something soft and flat, like a folded jacket, under his or her head.
  • Remove eyeglasses.
  • Time the seizure.
  • Check to see if the person is wearing a medical bracelet or other emergency information.
  • Keep yourself and other people calm.

    In 2015, 1.2% of the U.S. population had, active epilepsy. This is about 3.4 million people with epilepsy nationwide: 3 million adults and 470,000 children.
    Data Source: National and State Estimates of the Numbers of Adults and Children with Active Epilepsy — United States, 2015, Morbidity and Mortality Weekly Report

Call 911 if…

  • The person has never had a seizure before.
  • The person has difficulty breathing or waking after the seizure.
  • The seizure lasts longer than 5 minutes.
  • The person has another seizure soon after the first one.
  • The person is hurt during the seizure.
  • The seizure happens in water.
  • The person has a health condition like diabetes, heart disease, or is pregnant.

Knowing what NOT to do is also very important for keeping a person safe during or after a seizure. Never do any of the following things:

  • Do not hold the person down or try to stop his or her movements.
  • Do not put anything in the person’s mouth. This can injure teeth or the jaw. A person having a seizure cannot swallow his or her tongue.
  • Do not try to give mouth-to-mouth breaths (like CPR). People usually start breathing again on their own after a seizure.
  • Do not offer the person water or food until he or she is fully alert.

Supporting someone with epilepsy

Zayan and Eshita in Chatanooga, Tennessee
Zayan and me enjoying our visit to Chattanooga, Tennessee

After his first seizure, Zayan struggled to understand how epilepsy would affect his life – Can I still play soccer?  Will my friends still like me? Will my friends and family look down on me or look at me differently?  Will the cost of my medicines be a burden to my family?  Will I be a burden to my family?

The first medicine Zayan was prescribed helped his seizures, but caused a lot of side effects, including rapid weight gain. After finding a medicine that worked for him, Zayan spent years learning to overcome the medicine’s effect on his mood and relationships. He is grateful for the support he received and that those close to him were able to come to terms with his condition.

With the support of his family and friends, Zayan has learned to keep his seizures in check and lead a normal life.  Today he has aspirations to become a pharmaceutical researcher who finds effective treatment methods for coping with epilepsy.

Resources for family, friends, and caregivers

If you have a loved one with epilepsy you can:

  • Learn about epilepsy.
  • Learn seizure first aid.
  • Listen. Sometimes this is the best form of support.
  • Ask what you can do to help.

People who take care of someone with epilepsy should learn everything they can about the disorder, and the specific type of seizures their loved one has.  Caregivers can work with their loved one’s healthcare provider to learn about treatment options, manage medicine side effects, and address other medical conditions the person may have. Caregivers may also benefit from connecting to others in their community who also deal with epilepsy.

Learn more

Step it up outdoors

Mother and father swinging daughter outdoors

Physical activity can improve your health. People who are physically active tend to live longer and have lower risk for heart disease, stroke, type 2 diabetes, depression, and some cancers. Physical activity can also help with weight control, and may improve academic achievement in students. Walking is an easy way to start and maintain a physically active lifestyle, and parks are a great place to start.

Physical activity made easy

People of all abilities can benefit from safe and convenient places to walk, run, bike, skate, or use wheelchairs. The decision to walk is personal, but that decision is easier if community walkability is improved. It is important to connect places that people regularly use with sidewalks or paths that are safe and attractive, especially between schools, worksites, parks, recreational facilities that are within walkable distance of each other.

A walk in the parkThe community of West Wabasso, Florida, worked with the Indian River County Health Department and other government agencies to create safe public places for walking, exercise, and play. The project established bus routes, installed streetlights and sidewalks, and improved local parks. Residents filled out a survey about the changes to their community. Ninety-five percent of respondents said they spent more time exercising outside than they had 2 years earlier. They said the changes to their neighborhood, especially the streetlights and creation of safe places to exercise and walk outside, made a big difference.

Less than 40% of people in the United States live within one-half mile of a park boundary, and only 55% of youth have access to parks or playgrounds, recreation centers, and sidewalks in their neighborhoods. However, there is evidence that people with more access to green environments, like parks and recreation areas, tend to walk more than those with limited access. Well-designed parks and trails can promote physical activity and community interaction and provide mental health benefits, such as reduced stress.

Design matters

To help people be active, parks and recreation spaces can offer opportunities for various types of activity, such as walking, hiking and team sports. Programs can be designed to attract a wide range of visitors—age groups, cultures, and ability levels—throughout the year. Park programs can also help participants address barriers to physical activity, including physical limitations and safety concerns. Walking groups or buddy systems can help provide people with multiple opportunities to walk each week. Park entrances with universal access for multiple types of active transportation can promote biking and walking to and from the park.

In September 2015, the Office of the Surgeon General in the US Department of Health and Human Services released Step It Up! The Surgeon General’s Call to Action to Promote Walking and Walkable Communities (the Call to Action) to recognize walking as an important way to promote physical activity among most people. The Call to Action is intended to increase walking across the United States by calling for improved access to safe and convenient places to walk and wheelchair roll, as well as a culture that supports these activities for all ages and abilities.

 Learn more