New Book, “Run to the Light,” Chronicles a Journey with Batten Disease

  On Sunday, August 19, Taylor King will turn 20. On November 1, Laura King Edwards’s inspiring book “Run To The Light” will be published, by Bedazzled Ink. The memoir is an astonishing tale of

Is CRISPR Gene Editing Doomed, Even As Gene Therapy Enters the Clinic?

Anyone watching the recent 60 Minutes segment on CRISPR would conclude that the gene editing technology is on the brink of pouring forth a cascade of cures. But a recent study reveals a mess of missing

How the Media Oversimplifies DNA Testing of Separated Families

When the Genetic Information Nondiscrimination Act of 2008 (GINA) was passed to unify “the existing patchwork of State and Federal laws,” the language was broad enough to apply to just about any use of information

Identical Twins, Physical Fitness, and Transgender Identity in the News

“Three Identical Strangers” explores the strange tale of triplets who found each other at age 19. The terrific new documentary “Three Identical Strangers” tells the remarkable tale of triplets separated in infancy who met for

Identical Twins, Physical Fitness, and Transgender Identity in the News

“Three Identical Strangers” explores the strange tale of triplets who found each other at age 19. The terrific new documentary “Three Identical Strangers” tells the remarkable tale of triplets separated in infancy who met for

Natural Blood Doping and Rewriting the Textbooks

The phrase “rewriting the textbooks” is more than a cliché to me, because that’s what I do. I revise each of my books every three years, updating the science. I love to explain biology through

New Treatment for Phenylketonuria (PKU) Clears Brain Fog

In the 1959 novella Flowers for Algernon by Daniel Keyes (and the 1968 film Charly), 32-year-old Charlie Gordon, a janitor at a New York City bakery, undergoes experimental surgery that has boosted the intelligence of a

Gene Therapy for Myotubular Myopathy: Early Signs of Success!

Parents cherish developmental milestones, from a newborn’s grip of an offered finger; to an infant’s holding her head up the first time; to rolling over, creeping, and crawling; then to standing, cruising, and finally walking.

French Anderson, “Father” of Gene Therapy, Released From Prison

  Tonight French Anderson was released from state prison in California, after serving nearly a dozen years for “inappropriate touching and medical exams” of a girl, from 1997 to 2001, starting when she was ten.

Celebrating The Moms of Gene Therapy

As Mother’s Day and the annual meeting of the American Society of Gene and Cell Therapy approach, I’d like to update the stories of some of the moms I’ve written about, and introduce a new